A Patient’s Perspective on the Ahmedabad Patient Support Group Meeting  by Karan Vyas

A Support Group Meeting was held on 18 May 2025 for CML and GIST patients in Ahmedabad. Karan Vyas, FOM (Gujarat) City Chapter Leader was interviewed to share his experience. Here is what he had to say:

1. How do these gatherings impact individuals, and what emotions surface when connecting with the FOM Community?

The meeting radiated a deep sense of belonging, hope, and mutual understanding. New patients expressed feeling “less alone,” while long-time survivors spoke of “renewed strength.” Tears, laughter, and shared hugs were common, underscoring the emotional healing that occurs when patients connect with others on similar journeys. Caregivers also shared how the FOM community helped them stay strong for their loved ones.

2.    Now it has been 20 years since we have been doing patient support group meetings, how do you think the meetings have evolved, what are the new changes in the discussions and workshops that you are seeing?  

The structure and content of the meetings have significantly evolved. Initially focused mainly on medical education and treatment access, today’s gatherings now include:

·         Mental health workshops

·         Nutrition and wellness sessions

·         Storytelling and creative expression

·         Survivorship and return-to-work guidance

·         Technology integration, including hybrid meetings and follow-up WhatsApp groups, has also improved continuity of support.

3. What would you like to see in future meetings? 

At the meeting many attendees have expressed interest in:

·         Regional language breakout groups for better accessibility

·         Dedicated caregiver sessions

·         Workshops on coping with relapse anxiety

·         Young adult sessions to address unique concerns

4.   In your experience with Support Group meetings, can you share a specific instance where you witnessed a notable impact or positive outcome for a patient?

I would like to share my own story. I was a 10-year-old boy from Vadodara, Gujarat, when my parents and I were on the verge of losing hope due to economic strain. After attending my first FOM meeting 20 years ago, I connected with Viji Venkatesh (affectionately known as Amma), who guided us through the GIPAP program and provided both medical and emotional support. Today, 20 years later, I am a rifle shooter athlete, representing at state and national level championships and have received many prestigious medals and honors along the way.